According to a recently published study, the number of persons diagnosed with and dying from dementia continues to climb.
The study found that persons dying from dementia receive poor end of life care including the use of procedures or tests with little or no benefit, un- or undertreated physical and psychological symptoms, and futile care.
This is in contrast to the patient's perspective on quality end of life care — adequate pain and symptom management, avoidance of prolongation of dying, achieve a sense of control, relieve burden, and strengthening relationships with loved ones.
The study recommends hospice, initially developed to improve the end of life care for persons dying from cancer, as an existing care model that can bridge these differences in experiences and wishes.
Expansion of hospice services for persons dying from dementia may be limited by a number of obstacles that require consideration such as difficulties with prognosis, misconceptions by providers and families about the dying process in dementia, reimbursement issues, and regulatory oversight. The study, however, concluded that a thoughtful and proactive approach can overcome these barriers, support hospice utilization, and bring about a more humane death for dementia patients and their families. For more, read the article.
Robert W. Carter, Jr. is a Virginia attorney whose law practice is
dedicated to protecting the rights of the victims of nursing
home and assisted living neglect and abuse in Richmond, Roanoke,
Norfolk, Lynchburg, Danville, Charlottesville, and across Virginia.
Posted on Wed, July 1, 2009
by Robert Carter filed under